Lead: KU LEUVEN

Aim: Explore and identify best practices in current stakeholder engagement models in biobank-based cancer research across Europe, focusing on ELSI aligned with the Cancer Mission’s goals; and disclose gaps and context-specific needs to support the development of guidelines, training activities, and pilot engagement practices. 

Methods:

• Literature review

• Semi-structured interviews + workshops/focus groups; surveys.

• Preference study using Discrete Choice Experiment